Cycling for Evelina London – Devan’s story

06.07.17 Categories: Patient stories, Supporter stories,

Devan was born with a rare Cyanotic Heart Defect, he was diagnosed at just 8 weeks old. Within 3 days of falling sick Devan's condition deteriorated to a point where his little heart was struggling to pump blood around his body. Devan was diagnosed with Total Anomalous Pulmonary Venous Drainage (TAPVD).

‘By day five, Devan had been transferred to Evelina London where he was assessed immediately. On day six Devan underwent life changing surgery which saved his life – open heart surgery at 8 weeks of age. Devan is now two years old and is leading a happy and healthy life.

‘The service and treatment we received was outstanding, caring and considerate. Every single member of staff we met during the two weeks we stayed at the hospital went above and beyond in ensuring Devan got the best care he needed. Words cannot express our gratitude for the high standard of care and support that we received from the moment we entered, to the time we left the hospital.

‘One of the things me and my family promised ourselves when we took Devan home, was that in years to come we would like to do something on a more regular basis for Evelina London to show appreciation for the great work they do and for saving Devan’s life.

‘To support the ongoing work at Evelina London, I will be cycling from London to Amsterdam on Friday 7th July 2017, a journey taking two days to complete, totalling 251 miles and cycling 185 miles.'

Inspired by Devan’s story? You can sponsor Devan’s father Harry here or find out how you can take on your own challenge to support Evelina London.