Cycling for Charlie - Iain's story

18 July 2017

Charlie was diagnosed with congenital lobar emphysema when he was born at Evelina London.

happy father with cuddling elderly son and holding new born to the left, little boy wearing green and purple sleepers laying on the back to the right
Charlie, with his grandfather Iain

Congenital lobar emphysema is a rare respiratory disorder in which air can enter the lungs but cannot escape, causing overinflation (hyperinflation) of the lobes of the lung. He was treated by Dr Durward, who first did a bronchoscopy on Charlie and referred Charlie to have a left upper lobectomy.

When they were examining Charlie they found two holes in his heart. Once he had his lobectomy, Charlie was in PICU and slowly was getting better. He was ventilated from the moment he arrived at Evelina London until he was successfully extubated and moved to the Mountain Ward, where he was until he went home. His grandfather Iain was amazed by the level and scale of care that the Evelina London provided.

Iain said: 'I remember when Charlie had been operated on and day by day he improved, then after two and a half weeks he was allowed to come home, which was such a great deal for us. I have a photo of him smiling with many tubes attached to him. This picture is in our bedroom so every day we wake up and we see him, it reminds us of how lucky we all are to have him with us and that is down to Evelina London'.

Iain recalled when Charlie was first admitted to Evelina London, and having to walk into intensive care and seeing how many seriously ill children were being cared for. He asked one of the staff how many children were there in intensive care and they responded with an eye-opening comment, which he never forget: 'that all sixty beds were taken!' That comment always moved him to want to raise money for Evelina London and support the fantastic work they do.

Iain always had a passion for cycling and after, looking through the fundraising website, noticed there were places for Prudential RideLondon-Surrey 100. This presented a fantastic opportunity for him to raise money for Evelina London.

Iain said: 'My grandson will be at the finish line waiting for me and cheering me on. It’ll be a great way for me to show my appreciation for the great work Evelina London do.'

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