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Running for Evelina London - Jon's story

20.04.17 Categories: Patient stories, Supporter stories, How donations help, News from the hospital,

Jon ran the 2017 London Marathon for Evelina London Children's Hospital and raised £4,960, finishing with an impressive time of 03:55:58. It was Jon’s second time running for our special hospital. Jon shares with us his moving story that has led him to support Evelina London.

‘My daughter Amalia Eponine was treated at Evelina London in 2014 when she was 5 1/2months old. She had a very rare, life-threatening condition called encephalitis HSV1, which causes inflammation of the brain, and which almost took her life. She was put on a series of medications and was closely monitored on the high dependency unit while a correct diagnosis was sought.

‘Amalia is now three years old and is a very happy and active little girl. However due to the illness Amalia incurred a brain injury which has seriously affected her ability to speak and her development to the extent that we don't know how she will be in the future. Amalia also suffers from epilepsy as a result of the encephalitis and is still under the care of Evelina London.

‘We are so lucky that this hospital was and is here for us, as are many other families. Since our experience my family and friends and myself have tried to raise awareness and as much money as possible to help Evelina London carry on their amazing care and work. Many of you like us probably weren’t aware of Evelina London until a life changing experience, but we are so fortunate that they were there for us at the worst moment of our lives. It's such a special place and doesn't really feel like a hospital. We just hope we can repay them by raising as much as possible.’

Find out more about how you can donate or start fundraising today.